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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia
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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

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Topics: Announcements


Fanconi Anemia Research Fund Receives Grant to Expand Development Program

FARF Receives Grant

Dec 1st, 2017

The grant will allow FARF to generate greater income to support its mission to find effective treatments and a cure for FA and to provide education and support services to affected families worldwide.

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Topics: Announcements

Joel Walker Scientific Meeting Series Established

Joel Walker Scientific Meeting Series Established

Jul 1st, 2017

A generous bequest from Joel Walker's estate and on-going support from the Walker family make this important series of scientific meetings possible.

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Topics: Announcements

Running for Her Life

Running for Her Life

Apr 21st, 2017

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.

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Topics: Stories

Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Apr 15th, 2017

The daughter of the late University of Oregon President Dave Frohnmayer and his wife Lynn was one of their 3 daughters who inherited Fanconi Anemia, which can lead to bone marrow failure and cancer.

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Topics: Stories

Welcome Mark Quinlan, New Executive Director of the FA Research Fund

Welcome Mark Quinlan

Apr 1st, 2017

Mark comes to FARF with years of nonprofit and Executive Director experience.

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Topics: Announcements

Knight Family Funds Five Fanconi Anemia Research Projects in First Year

Knight Family Funds Five Fanconi Anemia Research Projects in First Year

Mar 22nd, 2017

In December 2015, Phil and Penny Knight pledged a gift of $10 million over ten years to support the David B. Frohnmayer Scientific Research Fund, a dedicated fund under the umbrella of the Fanconi Ane

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Topics: Announcements