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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer
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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

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Topics: Announcements


How You’re Making a Difference: Zach’s Story

How You’re Making a Difference: Zach’s Story

By: Mark Quinlan, Executive Director | Dec 15th, 2020

I want to share how you have made life a bit more hopeful and promising for people living with Fanconi anemia. In particular, I want to tell you about a 14-year-old boy from Illinois named Zach.

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Topics: Stories

Research Update Winter 2020: Cancer, Fertility, Bone Marrow Failure

Research Update Winter 2020: Cancer, Fertility, Bone Marrow Failure

Dec 14th, 2020

This report is an overview of research shared at the 2020 Fanconi Anemia Research Fund Scientific Symposium covering three main topics: solid tumors, fertility, and bone marrow failure.

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Topics: Announcements

How to Be Present for Your Friends This Holiday Season

How to Be Present for Your Friends This Holiday Season

By: Allison Breininger | Dec 7th, 2020

Life can be hard this time of year. While for some, twinkly lights, eggnog, and carols help lighten the mood, for others the holiday season feels like a time of mourning and struggling.

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Topics: Announcements

A Ninja from the Desert

A Ninja from the Desert

By: Assila Al Marshoudi | Oct 27th, 2020

Until September 2017, we were a happy family of six. Well, our lovely happy little family tripped into a very heavy hurdle that involved the health of our beloved little ninja, Omar.

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Topics: Stories

A diagnosis of FA amidst a global pandemic

A diagnosis of FA amidst a global pandemic

By: Chris Payne | Sep 10th, 2020

Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.

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Topics: Stories

Toxic Positivity: It’s okay not to be okay

Toxic Positivity: It’s okay not to be okay

Aug 19th, 2020

The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.

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Topics: Announcements