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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia
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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

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Topics: Announcements


Cultivating Wellbeing in Our Lives

Cultivating Wellbeing in Our Lives

Oct 9th, 2019

With a disease like Fanconi anemia, most of our attention is focused on physical health. Mental health is a component that may get overlooked, yet it is crucial to our overall wellbeing.

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Topics: Announcements

A Pursuit in Genetics

A Pursuit in Genetics

By: Anne Starner | Oct 9th, 2019

This summer, I had the honor of working in Dr. Alan D’Andrea’s lab at the Dana-Farber Cancer Institute in Boston. The people who research our disease are just as amazing as the people who have it.

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Topics: Stories

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

Read More >

Topics: Announcements

A gene therapy based clinical trial for Fanconi anemia patients offers its first successful results

A gene therapy based clinical trial for Fanconi anemia patients offers its first successful results

Sep 9th, 2019

FA researchers in Spain have published results from their gene therapy trial, showing that gene-corrected hematopoietic stem cells engrafted in the bone marrow of four people with FA.

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Topics: Announcements

Introducing the FAdult Council

Introducing the FAdult Council

Sep 5th, 2019

To better understand other issues facing the adult FA population, FARF formed an advisory council of adults living with FA. This group will provide input as FARF plans activities and policies.

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Topics: Announcements

Genotype-phenotype associations in Fanconi anemia: A literature review

Genotype-phenotype associations in Fanconi anemia: A literature review

By: Blanche P. Alter, FA researcher | Aug 21st, 2019

Publication spotlight on Fanconi anemia from September 2019's Blood Review scientific journal

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