Community News

 FARF co-founder speaks at 30th Symposium
Featured

FARF co-founder speaks at 30th Symposium

Jan 14th, 2019

Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.

Read More >

Topics: Stories


The Cancer Clock

The Cancer Clock

Dec 10th, 2018

Where were you the day your life changed forever? Do you remember how you felt the moment you knew nothing would ever be the same again?

Read More >


The Sibling Journey

The Sibling Journey

By: Nancy Cincotta, LCSW, MSW, MPhil | Dec 7th, 2018

What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?

Read More >

Topics: Stories

Scientist Spotlight: Agata Smogorzewska

Scientist Spotlight: Agata Smogorzewska

Nov 19th, 2018

Learn more about Dr. Smogorzewska of The Rockefeller University.

Read More >

Topics: Announcements

Do Something Amazing this Holiday Season

Do Something Amazing this Holiday Season

Nov 19th, 2018

One awesome way to make an impact this holiday season is to be part of life-changing FA research.

Read More >

Topics: Announcements

Ask the Adults: Advice for the Younger FA Generation

Ask the Adults: Advice for the Younger FA Generation

By: Jack Timperley | Nov 14th, 2018

Adults with FA answer the questions of children with FA and their parents.

Read More >

Topics: Stories

Let’s Meet at the Porch?

Let’s Meet at the Porch?

By: Marcos Teixiera | Oct 23rd, 2018

A Brazilian family's FA diagnosis and journey to Family Camp

Read More >

Topics: Stories