We've had a great year in fundraising, thanks to our dedicated family fundraisers and our generous donors!
FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.
It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.
The fear, concern, vigilance, and practices that the world is currently struggling to adopt have been part of your daily life and mine for years.
A message from FARF Executive Director Mark Quinlan in support of the Black community
Through donating to FARF, I hope and pray to find a cure for Emily and all those who suffer from this terrible disease.