Community News


Fundraising Wins: 2019-2020

Fundraising Wins: 2019-2020

Jul 28th, 2020

We've had a great year in fundraising, thanks to our dedicated family fundraisers and our generous donors!

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Topics: Announcements

Our Journey to Emma

Our Journey to Emma

By: Keith Loo | Jul 14th, 2020

FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.

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Topics: Stories

Exit Interview

Exit Interview

By: Sharon Schuman, PhD | Jun 17th, 2020

It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.

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Topics: Stories

Caregiving During Covid

Caregiving During Covid

By: Allison Breininger | Jun 5th, 2020

The fear, concern, vigilance, and practices that the world is currently struggling to adopt have been part of your daily life and mine for years.

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Topics: Stories

We Will Do Better

We Will Do Better

Jun 5th, 2020

A message from FARF Executive Director Mark Quinlan in support of the Black community

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Topics: Announcements

One donor honors her brother’s memory and helps find a cure for her niece

One donor honors her brother’s memory and helps find a cure for her niece

May 26th, 2020

Through donating to FARF, I hope and pray to find a cure for Emily and all those who suffer from this terrible disease.

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Topics: Stories