Community News


Fanconi Anemia Research Fund Launches First of Its Kind Cancer Consortium

FARF Launches Cancer Consortium

Jul 11th, 2022

The FA Cancer Consortium aims to streamline cancer care decision-making processes for patients with FA through evidence-based research.

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Topics: Announcements

Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

By: Rebecca Johnson | Jul 7th, 2022

We have learned A LOT in the past year. We have learned about FA and the struggles our boys will continue to have. We have learned that the FAmily is amazing and that we are stronger than we imagined.

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Topics: Stories

Violet’s Journey to Diagnosis and Transplant

Violet’s Journey to Diagnosis and Transplant

By: Paige Halverson | Jun 8th, 2022

I know that Violet’s journey will continue, and she will continue to be a rockstar in everything she does. Since diagnosis, the biggest lesson I have learned is to just keep going and have faith.

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Topics: Stories

Scientist Spotlight: Eunike Velleuer

Scientist Spotlight: Eunike Velleuer

May 17th, 2022

Learn about FA clinician and cancer researcher Eunike Velleuer, who is working on preventing and detecting oral cancer in people with FA.

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Topics: Stories

Research Report Winter 2022: Four New Grants Funded

Research Report Winter 2022: Four New Grants Funded

Apr 12th, 2022

In early 2022, four new grants were awarded to advance research in FA cancer preclinical models, Fanconi Anemia Neurological Syndrome (FANS), and mental health.

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Topics: Announcements

Navigating Depression and FA Through the Teen Years

Navigating Depression and FA Through the Teen Years

By: Mary Ann Lana | Mar 30th, 2022

I am realizing now that parenting Eli is parenting a young man with two diagnoses that can be life-threatening. There is the FA that looms on the horizon and threatens cancer, and there is depression.

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Topics: Stories