Community News

Now Hiring Clinical Programs Manager

Nov 19th, 2020

Overview and Qualifications

The Clinical Programs Manager (CPM) is responsible for managing the administrative aspects of clinical programs for the Fanconi Anemia Research Fund (FARF), which include, but are not limited to, the following: Fanconi anemia patient registry; virtual tumor board; publication of the clinical care guidelines for Fanconi anemia, cancer consortium biorepository, and virtual and in-person collaborative scientific events. The position requires a bachelor’s degree, but an advanced degree is preferred. FARF desires candidates with experience in biomedical, healthcare, or a closely related field. The CPM must communicate effectively in verbal and written forms and understand some clinical and scientific jargon. The best candidate will have a track record of organizing highly complex administrative processes in the clinical arena. The position is based in Eugene, OR, and will work remotely and at the FARF office. In the future, FARF will require travel to events and conferences. This position reports to the Scientific Director, who will also evaluate the employee.

About the Fanconi Anemia Research Fund (FARF)

FARF is considered one of the world’s best rare disease support organizations. Our mission is to find effective treatments and a cure for Fanconi anemia (FA) and provide education and support services to affected families worldwide. FARF has awarded over $25 million to researchers worldwide to support research projects focused on understanding the disease and how to treat it. Over the past 30 years, FARF-supported research has significantly improved and expanded the lives of those with FA. The FARF team is passionate about the mission and the external stakeholders they serve. The team members are supportive, collaborative, and strive for excellence in their respective positions and as a cohesive unit. FARF celebrates innovation, big-picture thinking, and flexibility while embodying attention to detail and focused progress.

Responsibilities include, but are not limited to:

  • Coordinating patient enrollment, registry account validation, information request, and survey administration for the FA patient clinical registry.
  • Responsibility for preparing clinical registry Institutional Review Board information for review.
  • Tabulating clinical registry summary statistics.
  • Managing the development of an integrated global FA patient registry network with existing FA clinical registries.
  • Interface with clinicians and researchers to facilitate clinical registry data extraction for research and therapeutic purposes.
  • Perform meticulous data management tasks, including proactively identifying data issues.
  • Periodically communicate with the National Organization for Rare Disorders concerning the structure of the registry database.
  • Program management of virtual tumor board, including data sharing, scheduling of tumor board meetings, and providing follow up for patients.
  • Provide administrative support to the FARF Head and Neck Squamous Cell Carcinoma (HNSCC) Consortium.
  • Manage the update process for the online version of the Fanconi Anemia Clinical Care Guidelines
  • With external stakeholders, manage the tumor acquisition process for the development of a FARF biorepository.
  • Collaborate with FARF staff to develop scientific meetings for external stakeholders.

Terms of Employment

This is a full-time, exempt position. The salary range is $55,000 - $60,000; the Executive Director will determine the exact salary. The position will include a full benefits package.

How to Apply

Please email your cover letter and resume as PDFs to alexander@fanconi.org by Friday, December 11.