Community News

Now hiring Family Services Director

Jul 22nd, 2019


The Family Services Director manages all aspects of family support and education. This position requires a minimum of three years of experience in a related field. A Bachelor’s degree in a related field is required and a Master’s degree in Social Work, Public Health, or a related field is preferred. Excellent written, organizational, and verbal communication skills are necessary to succeed in the position. The ability to understand Fanconi anemia to a level that enables practical assistance to families and individuals is mandatory. The Family Services Director will empower families and individuals using a high degree of emotional intelligence and the ability to facilitate connections to other families and individuals. Problem-solving skills and knowledge to efficiently deal with complex situations is necessary. This position is based in Eugene, OR and requires travel to conferences and meetings on an annual basis. The Family Services Director reports to and is evaluated by the Executive Director.

About the Fanconi Anemia Research Fund (FARF)

Lynn and Dave Frohnmayer founded FARF in 1989 to find effective treatments and a cure for FA and to provide education and support services to affected families worldwide. The FARF staff is a supportive, collaborative, fun-loving team that depends on each other to accomplish their respective tasks. This team works hard because they are passionate about their mission and about the people they serve. They celebrate milestones, embrace change, and embody flexibility. Comradery and humility are important to them. The office runs on encouragement and teamwork. FARF is considered one of the premier rare disease support organizations in the world. Over the last three decades, it has maintained this distinction by disseminating reliable information on FA, codifying care guidelines, funding symposiums and meetings, and providing more than 230 research grants to 75 institutions worldwide.

Examples of Duties

  • Design and implement organizational goals related to family services and education, including identifying the required resources to achieve goals.
  • Serve as the initial point of contact for newly diagnosed families.
  • Collaborate with other staff, especially the Family Services Coordinator, on family services projects and initiatives.
  • Stay current with the latest research, treatment developments, and clinical trials for Fanconi anemia.
  • Oversee the process for maintaining current, accurate, and complete family information files.
  • Direct planning and implementation of various educational and support meetings for individuals and families with Fanconi anemia.
  • Oversee the updating and production of Family Directory and Family Resource Guide.
  • Evaluate the effectiveness of family services programs through surveys and other assessment tools.
  • Collaborate with international Fanconi anemia support groups to determine the most efficient and effective ways to support, educate and connect the worldwide Fanconi anemia population.
  • Ensure that expenditures are within budget for Family Services programming and projects.
  • Moderate family services support group on Facebook.
  • Staff the scholarship committee and Winn-Byrd Award for Adults with FA committee.

Terms of Employment

This is a full-time exempt position. The salary range is $60,000 - $70,000. The exact salary will be determined by the Executive Director. A full benefits package is included with this position.

To Apply

Please send your resume and cover letter to by Friday, September 13th.