Community News

Now Hiring Research Program Manager

Nov 6th, 2019

Overview and Qualifications

The Research Program Manager (RPM) is responsible for managing the administrative aspects of the Fanconi Anemia Research Fund (FARF) grant process and all FARF-directed research projects. In this role, the RPM will work closely with the Director of Scientific Operations (DSO), Translational Science Director (TSD), and the Award Review Committee (ARC). The position requires a bachelor’s degree. Candidates with a degree in a scientific or closely related field are desirable. The RPM is expected to maintain relationships with external stakeholders and to have exceptional interpersonal and communication skills. The RPM must be able to communicate effectively in verbal and written forms and understand simple scientific jargon. The best candidate will have a track record of organizing highly complex administrative processes. Preference is given to candidates with prior program management experience in the nonprofit or higher education sectors. The position is based in Eugene, OR and may require some travel to events and conferences.The Research Program Manager reports to and is evaluated by the Director of Scientific Operations.

About the Fanconi Anemia Research Fund (FARF)

FARF is considered one of the premier rare disease support organizations in the world. It was founded by Lynn and Dave Frohnmayer in 1989 to find effective treatments and a cure for Fanconi anemia (FA) and to provide education and support services to affected families worldwide. FARF has awarded over $23 million to researchers around the world to support research projects focused on understanding the disease and how to treat it. Over the past 30 years, FARF-supported research has significantly improved and expanded the lives of those with FA.

The FARF team is passionate about the mission and the external stakeholders they serve. The team members are supportive, collaborative, and strive for excellence in their respective positions and as a cohesive unit. The organization thrives on an ethos of teamwork that is embedded between external stakeholders, the board of directors, and staff. FARF is a premier rare disease support organization because it celebrates innovation, big-picture thinking, and flexibility, while also embodying attention to detail and focused progress.

Responsibilities include, but are not limited to:

  • Manage and organize letters of intent submissions and full grant proposals.
  • Process external reviews of grant proposals.
  • Oversee all acceptance of award requirements with funded institutions and investigators.
  • Manage and monitor all grant follow-up progress reports and budgets.
  • Work with the Finance Manager to establish quarterly grant payments.
  • Manage tracking of funded projects.
  • Provide administrative assistance to the Executive Director for monthly ARC meetings.
  • Prepare and organize all grant proposals for yearly audit requirements.
  • Work with the TSD on FARF-directed research projects such as procuring patient data and samples for research or clinical purposes.
  • Assist with the logistics of scientific meetings.
  • Assist with data entry and data acquisition for the FARF clinical registry.
  • Attend and assist at FARF scientific meetings.
  • Monitor and acquire FA peer-reviewed publications.

Terms of Employment

This is a full-time exempt position. The salary range is $37,500 - $41,500; the exact salary will be determined by the Executive Director. The position will include a full benefits package.

How to Apply

Please email your cover letter and resume to helen@fanconi.org by December 6, 2019.