To all Your Rope Team and FARF supporters,
I’d like to start this decade off by saying thank you for your continued support of Your Rope Team and the Fanconi Anemia Research Fund over the last 12 years. During these years, we have accomplished numerous climbs and raised over $200,000 for Fanconi anemia research. It is truly incredible that in this time, we have seen an increased average life expectancy of those with Fanconi anemia (FA) by almost 10 years. This is remarkable progress, and you played a direct role in making it happen. Results like this make us confident about future research success.
I was recently diagnosed with Myasthenia Gravis (MG), a rare neuromuscular disease that results in my nerve endings not receiving all the nerve signals one needs. This leads to muscle fatigue, pain, and vision issues. We spent the better part of last year trying to obtain a diagnosis, which ultimately resulted in a spinal tap after the final climb in August on Sahale Mountain. The good news is that it could have been a worse diagnosis. I am managing MG with meds but, unfortunately, like FA, there is no cure. The worst thing I can do for my condition is to overexert myself, or exercise at all. My next personal mountain to climb is adjusting to this new normal after being so active my whole life. While my heart would love to climb again for those with Fanconi anemia, my body and doctors say no.
I can’t tell you how much I have loved climbing for Fanconi anemia fighters. The main focus of “Your Rope Team” has always been to find a cure and give those with FA more hope. I would love for all of my Rope Team supporters to help me celebrate our 12 years of progress by making a donation.
Even though I am taking a step back from climbing, I hope that my Rope Team supporters will continue to support those with Fanconi anemia.
I have been blessed with good health, met wonderful FA fighters, their families, FA researchers and doctors, and have great family and friends who have supported this effort over the last 12 years.
Thank you again for being on my Rope Team and please keep me and all of those dealing with FA or other afflictions like MG in your thoughts and prayers.
Let’s come together one more time as Your Rope Team to help find a cure for FA!