Community News

Robin Lewis receives 2021 Winn/Byrd Award for Adults with FA

Sep 8th, 2021

Robin Robin hiking

Congratulations to Robin Lewis, recipient of the 2021 Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia. Robin was born in Pretoria, South Africa and was diagnosed with Fanconi anemia (FA) at the age of 25. Despite the challenges of FA, Robin believes that FA has given him a new chance at a life filled with a positive outlook on his goals, attitude, perspective, and the planet. “I hope to inspire others to live a life full of love and appreciation.”

To enact this mission, Robin and his wife, Jolandie, started Numinous Expeditions in 2017. Numinous Expeditions is a nonprofit that carries out environmental, humanitarian, and animal welfare projects with a focus on ethical solutions and long-term outlooks. Their goal is to visit as many countries on the African continent as possible in their home-built expedition truck “Betsy”. In each country, they aim to complete a project catered to the needs of the local community. To date, they’ve completed nine community projects. Their latest project is called Eco-Flow and aims to educate 1,000 school children in rural South Africa about the benefits of sustainable farming, health, and dietary practices.

“Our focus embodies the three elements that exist on our beautiful planet: humans, animals, and nature. They can’t always be in harmony, but it is our pleasure to attempt it. Our projects tend to come our way naturally, and I truly hope we will be able to make a lasting impact on the world around us.”

Robin's acceptance speech

The Winn/Byrd award helps Robin and Jolandie start the next chapter of their journey. Importantly, it’s allowed them to add a much-needed housing section to “Betsy”. If you would like to learn more about Numinous Expeditions’ work or provide support, please visit their website at

Robin is dedicating their road trip across the Earth to FA families and the FA community. He will help educate others about FA and hopefully motivate others with serious health conditions to take action by sharing his own story. His positive outlook on life and drive to improve the lives of other people is truly inspiring. “I look forward to sharing our venture with the FA community for years to come and wish all of you good health and true happiness.”