With a disease like Fanconi anemia, most of our attention is focused on physical health. Mental health is a component that may get overlooked, yet it is crucial to our overall wellbeing.
FA researchers in Spain have published results from their gene therapy trial, showing that gene-corrected hematopoietic stem cells engrafted in the bone marrow of four people with FA.
To better understand other issues facing the adult FA population, FARF formed an advisory council of adults living with FA. This group will provide input as FARF plans activities and policies.
Each year, more than 50 FA families gathering Maine to connect, learn, and have fun. See the highlights from 2019's Family Meeting.
Why should you think about going to the meetings for adults with Fanconi anemia? Hear from people who have been.
Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project