Community News


Cultivating Wellbeing in Our Lives

Cultivating Wellbeing in Our Lives

Oct 9th, 2019

With a disease like Fanconi anemia, most of our attention is focused on physical health. Mental health is a component that may get overlooked, yet it is crucial to our overall wellbeing.

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Topics: Announcements

A gene therapy based clinical trial for Fanconi anemia patients offers its first successful results

A gene therapy based clinical trial for Fanconi anemia patients offers its first successful results

Sep 9th, 2019

FA researchers in Spain have published results from their gene therapy trial, showing that gene-corrected hematopoietic stem cells engrafted in the bone marrow of four people with FA.

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Topics: Announcements

Introducing the FAdult Council

Introducing the FAdult Council

Sep 5th, 2019

To better understand other issues facing the adult FA population, FARF formed an advisory council of adults living with FA. This group will provide input as FARF plans activities and policies.

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Topics: Announcements

The Family Meeting in Photos

The Family Meeting in Photos

Aug 13th, 2019

Each year, more than 50 FA families gathering Maine to connect, learn, and have fun. See the highlights from 2019's Family Meeting.

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Topics: Announcements

Top 10 Reasons to Attend the Meeting for Adults with FA

Top 10 Reasons to Attend the Meeting for Adults with FA

May 22nd, 2019

Why should you think about going to the meetings for adults with Fanconi anemia? Hear from people who have been.

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Topics: Announcements

FARF Tank 2019

FARF Tank

May 21st, 2019

Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project

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Topics: Announcements