Learn more about Dr. Wayne Crismani, who focuses on DNA repair, fertility, and metabolism in FA.
Before the FA Adult Retreat, I hadn't even categorized myself as a caregiver. It was a title I felt I hadn't truly earned. It felt silly to tell anyone I was drowning. How could I ask for help?
Henry is a recent high school graduate and is planning to attend St. John’s University in Queens, New York. He plans to earn a degree in Special Education with a minor in social justice.
Get to know Dr. Katy Pennington, a gynecologic oncologist whose research focuses on improving the lives of individuals with gynecologic cancer.
The occasion marks 40 years devoted to solving Fanconi anemia, the disease that took all three of her daughters.
We have learned A LOT in the past year. We have learned about FA and the struggles our boys will continue to have. We have learned that the FAmily is amazing and that we are stronger than we imagined.