Community News


Scientist Spotlight: Wayne Crismani

Scientist Spotlight: Wayne Crismani

Nov 9th, 2022

Learn more about Dr. Wayne Crismani, who focuses on DNA repair, fertility, and metabolism in FA.

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Topics: Stories

Am I a Caregiver?

Am I a Caregiver?

By: Kayla Letham | Oct 3rd, 2022

Before the FA Adult Retreat, I hadn't even categorized myself as a caregiver. It was a title I felt I hadn't truly earned. It felt silly to tell anyone I was drowning. How could I ask for help?

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Topics: Stories

Henry Fenyo Receives 2022 Winn/Byrd Award for Adults with FA

Henry Fenyo Receives 2022 Winn/Byrd Award for Adults with FA

Sep 16th, 2022

Henry is a recent high school graduate and is planning to attend St. John’s University in Queens, New York. He plans to earn a degree in Special Education with a minor in social justice.

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Scientist Spotlight: Katy Pennington

Scientist Spotlight: Katy Pennington

Aug 8th, 2022

Get to know Dr. Katy Pennington, a gynecologic oncologist whose research focuses on improving the lives of individuals with gynecologic cancer.

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FARF Co-Founder Lynn Frohnmayer Celebrates 80th Birthday

Happy 80th, Lynn Frohnmayer!

Jul 11th, 2022

The occasion marks 40 years devoted to solving Fanconi anemia, the disease that took all three of her daughters.

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Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

By: Rebecca Johnson | Jul 7th, 2022

We have learned A LOT in the past year. We have learned about FA and the struggles our boys will continue to have. We have learned that the FAmily is amazing and that we are stronger than we imagined.

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Topics: Stories