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Bill McCorey has spent the last decade climbing mountains all over the world to raise funds for FA research. In 2020, he takes on his final challenge.
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Growing up and taking control of your care is one of the most important - and challenging - steps you will take in adulthood.
A reflection on the personal connections that define us.
In September 2019, more than 200 researchers and clinicians in the FA community gathered in Chicago to share updates in research and care. Here are some of the highlights.
I’d like to tell you about a journey that changed my life forever. FA has taught me a couple of life lessons that you would expect to hear from a man late in his 90s.
At the FAdult Meeting in Chicago, Mary-Beth (a blogger & adult with FA), took over FARF's Facebook for a day and brought viewers behind the scenes at the meeting.