Community News

2023 Research Updates
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2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

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Topics: Announcements


Scientist Spotlight: Jacob Corn

Scientist Spotlight: Jacob Corn

Nov 17th, 2023

Learn about FA researcher Jacob Corn, who is working on gene editing in FA

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Topics: Stories

Supporters ‘Endure for a Cure’ with a 500-Mile Bike Race

Supporters ‘Endure for a Cure’ with a 500-Mile Bike Race

Oct 31st, 2023

This summer, a remarkable team of individuals united as “Endure for a Cure” to achieve something truly extraordinary: bike over 500 miles while raising $130,000 for research!

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Topics: Stories

Ana Tabar Receives the 2023 Winn Byrd Award for Adults with FA

Ana Tabar Receives the 2023 Winn Byrd Award for Adults with FA

Oct 5th, 2023

Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.

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Topics: Stories

Finding Hope, Unity, and Strength: The Transformative Experience of the FA Family Retreat at Camp Sunshine

Finding Hope, Unity, and Strength: The Transformative Experience of the FA Family Retreat at Camp Sunshine

By: Matt Wisniewski | Sep 11th, 2023

We are the Wisniewski family from Virginia. Our daughter Libi is 9-months-old and was diagnosed with Fanconi anemia (FA) only 30 days after she was born.

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Topics: Stories

Our Path Through Fanconi Anemia and Mental Resilience

Our Path Through Fanconi Anemia and Mental Resilience

By: Jen Aitkins | Aug 18th, 2023

As any parent knows when dealing with a child struggling with a rare disease, your mental health takes a toll. That's why therapy is a monthly ritual in our household.

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Topics: Stories

Scientist Spotlight: Ramon Garcia-Escudero

Scientist Spotlight: Ramon Garcia-Escudero

Aug 7th, 2023

Meet Dr. Ramon Garcia-Escudero, working on finding effective cancer treatments for FA

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Topics: Stories