An interview with Mary, mother to an adult son living with Fanconi anemia
FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.
It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.
The fear, concern, vigilance, and practices that the world is currently struggling to adopt have been part of your daily life and mine for years.
Through donating to FARF, I hope and pray to find a cure for Emily and all those who suffer from this terrible disease.
Several months ago, our daughter Bella undertook a very special sewing project: a t-shirt quilt. These weren't just any t-shirts, though. They were special and truly irreplaceable...