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 FARF co-founder speaks at 30th Symposium
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FARF co-founder speaks at 30th Symposium

Jan 14th, 2019

Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.

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Topics: Stories


 FARF co-founder speaks at 30th Symposium

FARF co-founder speaks at 30th Symposium

Jan 14th, 2019

Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.

Read More >

Topics: Stories

Heart of Celebration

Heart of Celebration

By: Mary-Beth Johnson | Jan 7th, 2019

Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.

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Topics: Stories

The Sibling Journey

The Sibling Journey

By: Nancy Cincotta, LCSW, MSW, MPhil | Dec 7th, 2018

What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?

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Topics: Stories

Ask the Adults: Advice for the Younger FA Generation

Ask the Adults: Advice for the Younger FA Generation

By: Jack Timperley | Nov 14th, 2018

Adults with FA answer the questions of children with FA and their parents.

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Topics: Stories

Let’s Meet at the Porch?

Let’s Meet at the Porch?

By: Marcos Teixiera | Oct 23rd, 2018

A Brazilian family's FA diagnosis and journey to Family Camp

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Topics: Stories

What Does it Take to Be a Caregiver?

Caregiver Job Description

By: Allison Breininger | Oct 9th, 2018

What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.

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Topics: Stories