Community News

2023 Research Updates
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2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

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Topics: Announcements


My (Continued) Journey with Fanconi Anemia Families

My (Continued) Journey with Fanconi Anemia Families

By: Nancy Cincotta | Apr 10th, 2023

I have had the distinct honor of watching many of you in the FA community grow up, embrace life, and deal with whatever FA brings.

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Topics: Stories

Naomi the Warrior

Naomi the Warrior

By: Amber McDougall | Mar 20th, 2023

Looking forward, we have hope. We are not naïve to the potential cancers that may be in Naomi’s future, but the amount of dedication to research and progress that keeps being made is encouraging.

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Topics: Stories

Living Life to the Fullest as an Adult with FA

Living Life to the Fullest as an Adult with FA

By: Andie Kalemba | Mar 15th, 2023

Life is too short to focus on the negatives and frustrations. It’s important to have fun, take advantage of new opportunities, and remember what matters in life.

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Topics: Stories

Scientist Spotlight: Sharon Savage

Scientist Spotlight: Sharon Savage

Feb 10th, 2023

Learn more about Dr. Sharon Savage, who works on cancer genetics and cancer syndromes like Fanconi anemia

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Topics: Stories

Brandon’s FA Journey

Brandon’s FA Journey

By: Stephanie Febles | Jan 20th, 2023

We stay positive and try to live a normal life. We know we will still have good and bad days, but for now we are focus on the good.

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Topics: Stories

Scientist Spotlight: Wayne Crismani

Scientist Spotlight: Wayne Crismani

Nov 9th, 2022

Learn more about Dr. Wayne Crismani, who focuses on DNA repair, fertility, and metabolism in FA.

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Topics: Stories