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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer
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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

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Topics: Announcements


Finding Inner Peace in Chaos

Finding Inner Peace in Chaos

By: Kyle Tanner | Mar 20th, 2020

If anything positive comes from any of this, I hope it is that by recognizing our complete helplessness towards mortality, we begin to look upon everything that surrounds us as a reflection of our own

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Topics: Stories

Learning how to dance life

Learning how to dance life

By: Amy Frohnmayer Winn | Mar 20th, 2020

FA has been my greatest teacher. Through the fires of fear and loss, and the lens of a condensed time perspective, this illness has made me inescapably aware of the preciousness of life.

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Topics: Stories

Day 250+ in Quarantine

Day 250+ in Quarantine

By: Ashleigh Pinion | Mar 19th, 2020

We were so close to “normal,” but that got taken away with one phone call from our doctors.

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Topics: Stories

A Space for Caregivers

A Space for Caregivers

By: Allison Breininger | Mar 18th, 2020

One group of people we often think about but don’t often directly address is caregivers. All of the partners, parents, siblings, grandparents, and friends, we want you to know how vital you are.

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Topics: Stories

One Final Summit

One Final Summit

By: Bill McCorey | Feb 21st, 2020

Bill McCorey has spent the last decade climbing mountains all over the world to raise funds for FA research. In 2020, he takes on his final challenge.

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Topics: Stories

Words of encouragement for everyone transitioning from pediatric to adult care

Words of encouragement for everyone transitioning from pediatric to adult care

By: Mary-Beth Johnson | Feb 20th, 2020

Growing up and taking control of your care is one of the most important - and challenging - steps you will take in adulthood.

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Topics: Stories