I want to share how you have made life a bit more hopeful and promising for people living with Fanconi anemia. In particular, I want to tell you about a 14-year-old boy from Illinois named Zach.
Until September 2017, we were a happy family of six. Well, our lovely happy little family tripped into a very heavy hurdle that involved the health of our beloved little ninja, Omar.
Congratulations to Maria Isabel Rodríguez Ribero! Maria is a mother, English teacher, master’s student, and community volunteer who lives in San Gil, Colombia.
Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.
Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA
An interview with Mary, mother to an adult son living with Fanconi anemia