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We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.
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FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.
This May, 30 FA families and members of the FA community held fundraisers all over the country and beyond to raise funds for research & family services.
The 4th Annual 5K for FA in honor of Eli Lana took place May 5 in Hilton, NY.
FARF friend and board member Sharon Schuman held her annual concert and wine benefit for FA research on April 8 in Eugene, Ore. FARF co-founder Lynn Frohnmayer spoke about the future of FA research.
Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.