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Show Us How You FA

Apr 1st, 2019

International FA month is May 2019. This is an international fundraising & awareness campaign created by FA families. FA means #FindAnswers and #FightAlways. Get involved today!

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Topics: Announcements


Let’s Meet at the Porch?

Let’s Meet at the Porch?

By: Marcos Teixiera | Oct 23rd, 2018

A Brazilian family's FA diagnosis and journey to Family Camp

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Topics: Stories

What Does it Take to Be a Caregiver?

Caregiver Job Description

By: Allison Breininger | Oct 9th, 2018

What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.

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Topics: Stories

Ten of the Best Things about FA Family Camp

Ten of the Best Things about FA Family Camp

Sep 6th, 2018

We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.

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Topics: Stories

No Longer an Orphan

No Longer an Orphan

By: Sharon Schuman, PhD | Jun 12th, 2018

FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.

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Topics: Stories

9th Fanconi Anemia Day Raises $52,000

9th Fanconi Anemia Day Raises $52,000

Jun 7th, 2018

This May, 30 FA families and members of the FA community held fundraisers all over the country and beyond to raise funds for research & family services.

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Topics: Stories

5K for FA Raises $28,000

5K for FA Raises $28,000

May 18th, 2018

The 4th Annual 5K for FA in honor of Eli Lana took place May 5 in Hilton, NY.

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Topics: Stories