FA has been my greatest teacher. Through the fires of fear and loss, and the lens of a condensed time perspective, this illness has made me inescapably aware of the preciousness of life.
We were so close to “normal,” but that got taken away with one phone call from our doctors.
One group of people we often think about but don’t often directly address is caregivers. All of the partners, parents, siblings, grandparents, and friends, we want you to know how vital you are.
Bill McCorey has spent the last decade climbing mountains all over the world to raise funds for FA research. In 2020, he takes on his final challenge.
Growing up and taking control of your care is one of the most important - and challenging - steps you will take in adulthood.
A reflection on the personal connections that define us.