Community News


Learning how to dance life

Learning how to dance life

By: Amy Frohnmayer Winn | Mar 20th, 2020

FA has been my greatest teacher. Through the fires of fear and loss, and the lens of a condensed time perspective, this illness has made me inescapably aware of the preciousness of life.

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Topics: Stories

Day 250+ in Quarantine

Day 250+ in Quarantine

By: Ashleigh Pinion | Mar 19th, 2020

We were so close to “normal,” but that got taken away with one phone call from our doctors.

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Topics: Stories

A Space for Caregivers

A Space for Caregivers

By: Allison Breininger | Mar 18th, 2020

One group of people we often think about but don’t often directly address is caregivers. All of the partners, parents, siblings, grandparents, and friends, we want you to know how vital you are.

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Topics: Stories

One Final Summit

One Final Summit

By: Bill McCorey | Feb 21st, 2020

Bill McCorey has spent the last decade climbing mountains all over the world to raise funds for FA research. In 2020, he takes on his final challenge.

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Topics: Stories

Words of encouragement for everyone transitioning from pediatric to adult care

Words of encouragement for everyone transitioning from pediatric to adult care

By: Mary-Beth Johnson | Feb 20th, 2020

Growing up and taking control of your care is one of the most important - and challenging - steps you will take in adulthood.

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Topics: Stories

What’s the most important relationship you have in the FA community?

What’s the most important relationship you have in the FA community?

By: Duncan Nunes | Feb 14th, 2020

A reflection on the personal connections that define us.

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Topics: Stories