Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.
La Anemia de Fanconi se consideraba una enfermedad huérfana por lo poco frecuente y lo poco que se conocían sus causas, sus conexiones a otras enfermedades, y sobre la existencia de tratamientos.
Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.
Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.
What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?
Adults with FA answer the questions of children with FA and their parents.
A Brazilian family's FA diagnosis and journey to Family Camp