Community News


Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

By: Rebecca Johnson | Jul 7th, 2022

We have learned A LOT in the past year. We have learned about FA and the struggles our boys will continue to have. We have learned that the FAmily is amazing and that we are stronger than we imagined.

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Topics: Stories

Violet’s Journey to Diagnosis and Transplant

Violet’s Journey to Diagnosis and Transplant

By: Paige Halverson | Jun 8th, 2022

I know that Violet’s journey will continue, and she will continue to be a rockstar in everything she does. Since diagnosis, the biggest lesson I have learned is to just keep going and have faith.

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Topics: Stories

Scientist Spotlight: Eunike Velleuer

Scientist Spotlight: Eunike Velleuer

May 17th, 2022

Learn about FA clinician and cancer researcher Eunike Velleuer, who is working on preventing and detecting oral cancer in people with FA.

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Topics: Stories

Navigating Depression and FA Through the Teen Years

Navigating Depression and FA Through the Teen Years

By: Mary Ann Lana | Mar 30th, 2022

I am realizing now that parenting Eli is parenting a young man with two diagnoses that can be life-threatening. There is the FA that looms on the horizon and threatens cancer, and there is depression.

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Topics: Stories

I Am a Fighter and a Cancer Survivor

I Am a Fighter and a Cancer Survivor

By: Michelle Watkins | Mar 22nd, 2022

Hi, my name is Michelle. Like a lot of teenagers, I had big dreams and goals for what I was going to do with my life. I never imagined I would have cancer in my thirties.

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Topics: Stories

Scientist Spotlight: Sara Frias

Scientist Spotlight: Sara Frias

Nov 10th, 2021

Learn more about Dr. Frias, who works on cytogenetics and leads an FA team in Mexico

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Topics: Stories