Community News


Scientist Spotlight: Jordi  Minguillon

Scientist Spotlight: Jordi Minguillon

May 17th, 2021

Learn more about Dr. Minguillon, who works on drug screening & cancer therapeutics in FA.

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Topics: Stories

Leo’s Story

Leo’s Story

By: Neftalí Bravo Saludes | May 6th, 2021

From the moment of diagnosis, I see life from a different perspective. Uncertainty makes us nervous and anxious, but when it comes to your day-to-day life, you must learn how to live with it.

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Topics: Stories

Joanne’s Legacy

Joanne’s Legacy

Apr 21st, 2021

"Even though we are all FA warriors, we all have different characteristics. With the help of FARF, I feel like I have an extended family and great support" - Joanne

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Topics: Stories

Loving Someone Rare

Loving Someone Rare

By: Allison Breininger | Apr 7th, 2021

My husband is one of the 30 million Americans living with a rare disease. Our disease is rare, but compassion for our loved ones and ourselves doesn’t have to be.

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My Joel

My Joel

By: Natalia Gimenez | Mar 30th, 2021

When I think back on our journey, it is so clear that quality of life is not only determined by one’s health, but that it is often determined by the joy and love that you let into your heart.

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Topics: Stories

Our Journey with FA and Brain Lesions

Our Journey with FA and Brain Lesions

By: Mary Eilleen Cleary | Jan 26th, 2021

Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most.

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Topics: Stories