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Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.
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La Anemia de Fanconi se consideraba una enfermedad huérfana por lo poco frecuente y lo poco que se conocían sus causas, sus conexiones a otras enfermedades, y sobre la existencia de tratamientos.
Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.
Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.
What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?
Adults with FA answer the questions of children with FA and their parents.
A Brazilian family's FA diagnosis and journey to Family Camp