Jordan Deines, LCSW

FA Research Fund - Community Programs Director

Jordan Deines

Jordan received her bachelor’s degree in psychology, then went on to earn her master’s in social work, followed by her license in clinical social work. In previous roles, Jordan worked with families and survivors of trauma in a hospital setting.

She joined the FARF team in 2019. As the Community Programs Director, Jordan oversees all of FARF’s patient and caregiver program initiatives. She works closely with FA patient and caregiver advocates and FA experts to develop resources that promote wellbeing and foster community care for those impacted by FA.

"I'm honored to serve on a team that promotes and aids access to education and support for FA individuals and caregivers in ways that ultimately empower them to become the primary drivers of FA research.”

In her free time, Jordan enjoys many outdoor adventures with her family, including hiking, camping, snow sports, and water sports. She’s also an avid traveler, having visited 21 countries and counting!