Lexi is a 2016 graduate from MIT where she studied mathematics and chemistry. She was also a pitcher on the MIT softball team that finished 5th in Division III and holds school records in strikeouts and wins. She remains in Boston where she works as a pension actuary for a consulting firm.
She was diagnosed with FA in 2020 after going into bone marrow failure. She considers herself lucky to have responded very well to Danazol which enabled her to avoid what was looking like an imminent stem cell transplant.
Lexi is passionate about patient education and self-advocacy. She attended the FA Adult Retreat in 2022 for the first time and took the opportunity to listen to the Scientific Symposium sessions as much as possible and considers that to be the most empowering experience since her diagnosis.