In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.
Directory
Lisa Mingo
President | CPA, CPHR
Mother of Dylan
Lisa joined the Fanconi anemia “FAmily” in 2007, when her 5-month-old son, Dylan, was diagnosed with FA. A world traveler, Lisa has a love of meeting new people and experiencing other cultures. She has lived and worked in four continents and currently lives in Vancouver, Canada with her New Zealand-born husband, Mark, and their two boys, Connor and Dylan. As a Canadian CPA (Chartered Professional Accountant) and CPHR (Chartered Professional of Human Resources), Lisa has experience working across a variety of industries in the Finance, HR, IT and Project Management spaces.
Presently, she owns and operates a small architectural practice with her husband. Lisa is looking forward to her continued involvement in progressing FA research as a board member and fundraiser. She and her family have held community-based fundraisers in Vancouver since 2011. Of particular interest to her is expanding FCF’s connection to the international community.
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World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...
My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing.