Mother of Kirsten, Katie, and Amy
Lynn Frohnmayer and her husband, David, founded the Fanconi Anemia Family Support Group in 1985 and the Fanconi Anemia Research Fund in 1989. She served as advisor to the board of directors of FARF from 1999 until 2011, and served as vice president 2011 to 2016. She also serves on FARF’s research award review committee. She has been an editor of the FA Family Newsletter since its first publication in 1985; co-editor of two editions of Fanconi Anemia: A Handbook for Families and Their Physicians, and a co-editor of five editions of Fanconi Anemia: Guidelines for Diagnosis and Management.
Having three daughters with Fanconi anemia has driven her passion to understand and improve the outcome for all patients with this devastating genetic disorder. She is a key fundraiser for the Fund and devotes her time to understanding this disease, current and future therapies, and the impressive progress of scientific research.