In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.
Directory
Marie Sweeten
Family Services Director
A lifelong Oregonian, Marie loves exploring nature with either her running shoes or her camera. She has always been motivated to help others, which led her to pursue a degree in Human Development & Family Sciences from Oregon State University. With over 14 years of experience in social services, Marie brings resourcefulness and compassion to the team. At the Fund, she dedicates her time to helping FA families navigate the Fanconi anemia world in any way she can: “It’s a great feeling to be someone’s hero for a moment.” She strives to make a difference in people’s lives and also has a huge heart for animals. In her free time, she enjoys running, photography, going to the beach and spending time with friends, family, and her cat, Chloe.
What are you known for around the office?
Finding answers and resources. Also, finding the chocolate.
The Latest
News & Events
World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...
My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing.