Directory

Mark Quinlan

Executive Director

Mark has served as Executive Director for the Fanconi Cancer Foundation since 2017. As Executive Director, Mark oversees all facets of operations, finances, and program development, while expanding the donor base, investigating new revenue sources, and elevating impact. He leads with empathy, inclusivity, and unwavering dedication to the cause. He has obtained a  bachelor’s degree in Social and Behavior Science and a master’s in Public Administration, which have helped shape his leadership style. He strives to enact meaningful change and positive growth and feels most fulfilled when he is helping others.

“I love knowing that when I go to work each day I have the ability to affect the lives of others in a positive way.” Mark’s love of the outdoors brought him from his native Minnesota to the mountains of the west to pursue his career in nonprofit management while still nourishing his love of nature. He now lives in Coburg, Oregon, with his wife Cheryl. In addition to cycling and fly-fishing, Mark enjoys traveling and experiencing other cultures.

The Latest

News & Events

Introducing the Fanconi Cancer Foundation: A New Era in FA Research & Impact

In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

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The Genetic Revolution for Fanconi Anemia Begins Now 

World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...

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From Diagnosis to Advocacy: My Story with Fanconi Anemia

My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing. 

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