Matthew Pearl is a 26-year-old individual with Fanconi anemia and patient advocate. He serves in various capacities on several nonprofits, including the Fanconi Anemia Research Fund (FARF), the Rare Action Network (RAN), the National Organization for Rare Disorders (NORD), and the National Ability Center (NAC). He is on the board of directors for both the Utah Rare Disease Advisory Council (RDAC) and The Professional Ski Instructors of America – American Association of Snowboard Instructors Intermountain. Matthew obtained a bachelor's of science degree from Westminster College, MO with a major in Leadership Consulting in Organizations and minors in Social and Personality Psychology and Nonprofit Management. Matthew attended the Dana Farber Cancer Institute at Harvard as the first patient with FA to research FA.