Directory

Sandra Hilliard

Finance Coordinator

Sandra brings a joyous, bubbly, and infectious presence to the FARF team. Motivated by the families FARF serves, her coworkers, and the impact the organization makes, Sandra strives to help achieve FARF’s mission with a smile and a light-hearted spirit. As Finance Coordinator, Sandra is responsible for overseeing all aspects of the organization’s bookkeeping and accounting functions. Born and raised in the countryside of Oregon, she now lives in Eugene with her partner, Scott, and her two teenagers, Carly and Ashton. On any given weekend, you could find Sandra out fishing on her boat, hanging with her kids, or cuddling with her grandbaby. Between her duties at FARF and at home, Sandra is always busy but never fails to offer a smile and a kind word to anyone she encounters.

What would be impossible for you to give up?
Spaghetti! I could eat it for every meal (and do, sometimes)!

The Latest

News & Events

Introducing the Fanconi Cancer Foundation: A New Era in FA Research & Impact

In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

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The Genetic Revolution for Fanconi Anemia Begins Now 

World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...

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From Diagnosis to Advocacy: My Story with Fanconi Anemia

My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing. 

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