In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.
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Sudhir Borgonha
Translational Science Director | MD
Sudhir is a physician researcher with over 15 years of experience leading early stage projects and companies. Before coming to FARF, he was the Medical Director at Strand Genomics, where he was instrumental in developing customized gene panels in rare diseases and cancer, including launching a liquid biopsy test. He oversaw clinical reporting in collaboration with clinicians across the globe for over 5,000 patients per year, of which over a 1,000 were in rare diseases. As Translational Science Director, Sudhir leads development of FA translational science by working with academic and industry partners to pursue clinical research opportunities to better understand and treat FA. He manages translational projects including the development of a clinical registry and tissue bank.
A graduate of St. John’s Medical College, Bangalore and the Sloan School of Management, MIT, Sudhir is passionate about integrating emerging technologies into medicine. He is an aspiring writer and still has mixed feelings about why Bob Dylan won the Nobel prize in literature and Philip Roth didn’t.
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World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...
My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing.