In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.
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Suzanne Planck
Family Services Coordinator
Suzanne is a native Californian who moved to Oregon in search of a greener, more peaceful place to raise her family. She earned her Bachelor of Science in Nursing and a Bachelor’s in Nutrition, then worked a nurse and homemaker before she joined the nonprofit world. “I believe in working to improve the lives of others and to make a true difference. I’m inspired by true, active compassion; this compassion asks us to get uncomfortable and inconvenienced. I admire those that are willing to put the needs of others before their own desires and comforts.”
Suzanne is driven by this compassion, working with the Family Services Director to support FAmilies by fostering connections, providing educational materials, finding resources, and planning meaningful meetings. A self-professed coffee addict, Suzanne loves spending time with her family and friends, serving the community, and being outdoors. Her perfect Sunday involves taking a nap after a big brunch at church and anticipating her kids coming home for dinner.
What are you known for around the office?
Baking goodies! Feeding people—it’s one way I show love.
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World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...
My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing.